Life Happens...............

Well.......in my last post I shared from my heart how much I looked forward to our Christmas trip we go on each year...........well, as soon as we arrived in Tennessee, I was sick.  Spent most of my vacation in bed because I felt so bad.  No snow..........no shopping.........I did get to see our relatives and visit some.  But the ritual stuff I was used to doing when I went, did not happen, I was so disappointed in how things turned out.

Isn't that what happens when we get things in our heads, we build them up till they can't possibly live up to the expectations of our expectations..........!!

I've also been told that we are using to many hours in our Medicaid Waiver, we are going to have to cut back the amount of hours we get help with Brad.
He doesn't sleep very well, and you have to almost be in his room every night for him to stay in there and sleep.  He has a cough, and when he coughs, he sits up in his bed and you have to be there and lay him back down pretty soon or he wakes up and won't go back to sleep.

I guess you can't complain........at least we get some help to keep him home.
I just can't imagine putting him in an institution........I just can't do it.  I have to know what is going on with him, who is working with him.......

Christmas in Tennessee.......coming soon!

I haven't really told anyone how much the trip to Tennessee means to me, it really makes my Christmas.

It always seems to snow duirng our trip, so at least once a year I can see some snow and hear Christmas music at the same time...........lol   Eveybody around you is smiling and happy........how can you be sad duirng this time.

I have lost loved ones at Christmas Time...my brother, Gary, died in a car wreck when he was 21 the morning after Christmas Day.  I refuse to think that Gary would want me to be sad and let that affect my attitude toward Christmas.  I do miss his smile and sense of humor.  His death really changed our family for a long time, but it has been better lately.  Mom's gone, it just doesn't seem like 3 yrs have gone by.  Dad is 84 yrs old and still sharp as a tack.

Brad (MPSIIIB) has had trouble sleeping one night this week, he did not go to sleep Friday night until 5 a.m. so he has been a little slow, he got to go to a Christmas Party Saturday afternoon, got to see Santa.  Lots of music and laughter...........

We wrapped all of our presents today and got them under the tree.........thats better than past years.

We have been cleaning out some closets and drawers in the kitchen.......little by little.

2nd week of December 2010

Another change in behavior...........never ends!!!!!!!!

Day after day......he gets up....eats breakfast, watches TV, walks and walks.......it tires him out...he eats lunch, same thing, watches TV, walks and walks on till he goes to sleep at night (if he even sleeps at night)

His day now is........

Gets up eats breakfast, falls asleep in his chair, we put him to bed and he sleeps till about 1 p.m.........he has never done this before, unless he didn't feel good.  He seems to be fine.

I just don't get it.........this disorder is so strange.........

I got him a dvd of the "Shirt Tails" (for Christmas)...he used to come in everyday after school and watch it on Television.  I think he is going to love it.........It has gotten harder and harder to get him something that he will enjoy.  I've gotten him the usual, shirts and house pants........nothing fun....except the dvd.

I can't seem to shop without finding something I want.........isn't that horrible??
I want a camera, a small one, to use and post on this site.......to share pictures of my life.  Not that anyone will ever see it.........lol