Well.......in my last post I shared from my heart how much I looked forward to our Christmas trip we go on each year...........well, as soon as we arrived in Tennessee, I was sick. Spent most of my vacation in bed because I felt so bad. No snow..........no shopping.........I did get to see our relatives and visit some. But the ritual stuff I was used to doing when I went, did not happen, I was so disappointed in how things turned out.
Isn't that what happens when we get things in our heads, we build them up till they can't possibly live up to the expectations of our expectations..........!!
I've also been told that we are using to many hours in our Medicaid Waiver, we are going to have to cut back the amount of hours we get help with Brad.
He doesn't sleep very well, and you have to almost be in his room every night for him to stay in there and sleep. He has a cough, and when he coughs, he sits up in his bed and you have to be there and lay him back down pretty soon or he wakes up and won't go back to sleep.
I guess you can't complain........at least we get some help to keep him home.
I just can't imagine putting him in an institution........I just can't do it. I have to know what is going on with him, who is working with him.......
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